Before I get started, lets all take a moment to sing happy birthday to my oldest son, Pitkin. He is three today.
Yesterday was one of the toughest days so far. I woke up stiff and without a voice. All the progress I had made in raising my arms was gone. I felt like I was starting all over again. There is so much fluid in my chest I can hear it swish around like a water balloon. I have these lovely tubes that stick out of my stomach. At the end of the tubes are large round bulbs. They collect all the fluid and have to be emptied twice a day. Derek has become quite the master. Sorry if you have a weak stomach but some of you have asked what these drains look like….
I have to wear special tops that hold the drains around my stomach. I look like a kangaroo carrying around my baby. Definitely can’t go in public with these things. Hopefully I won’t have them much longer.
Last night my left chest got so tight I found it hard to take a breath. It hurt to even speak. It was the worst pain I have been in since waking up from surgery. We almost packed up and headed back to the hospital. There is always the possibility that the drains punctured my lungs going in and I would have fluid in one lung. A chest X-ray will probably be on my schedule today. Won’t know until I see the doctor today at 1. I do feel better than last night so I think I will be fine. I have a breathing machine that I have to use 5 times an hour. I take a deep breath and breath in for 5 seconds. My goal is to get the marker up to 3000. I have made it to 2500. I think that’s pretty good. It’s hard.
My hair is really starting to come in. Everyday it gets thicker. However, I am still loosing eyebrows and eyelashes. I look really strange. My family has been so great this week. They have all been taking turns caring for me. I always had a full hospital room. My aunt Betsy flew in from LA to surprise me. My mother in law came in as well and gets to take card of me all month!! I can’t even begin to tell them how thankful I am for all they have done for me. It is very humbling to look and feel the way that I do and to have them support me more than ever. This is us leaving the hospital CANCER FREE. I think the smiles on our faces tells it all.
I can say thank you enough for all the cards, flowers, gifts and prayer I have received this week. My room looks and smells amazing!! Just a constant reminder I am loved. Thank you!